Monday, July 2, 2007

Good news!

Big news - the wound vac is gone! Diana had an appointment with her doctor today, and he took one look at her large wound, said "This is looking great - you don't need that thing" and took the wound vac off! We were surprised, but pleased, to say the least; not just because she is now no longer attached to any machines (yay!), but also because it means that she is healing so well and making great progress.

In general, Mom is still doing very well. She tires easily and is frustrated at how weak she feels, but the only treatment for these problems is time, we're told.

Her progress has been so dramatically positive up to now that both Mom and I tend to forget how well her recovery is going. She is usually so tough, and is used to being so productive in the course of a day, that both she and I have to remind ourselves that the difference between her condition 1 month ago and today is vast. I try to encourage her to be proud of and encouraged by what she has accomplished in the past month - its amazing!

So, we are saving the champagne for later, but we are definitely having a celebration (though a quiet one) today. : )

Friday, June 29, 2007

Doing Great

Sorry to have been absent with updates for so long. The days seem more full now that Mom is at home - although, some days they are full of watching movies or, our favorite, HGTV. : )

Diana is doing very well. She is sometimes frustrated that she is not "back to normal" yet, but comparison is all, and when one considers how ill she was just a couple of weeks ago, her progress is remarkable.

A wound care specialist visited us this week, to lend a more experienced eye to Mom's healing process. He told us that all of the wounds are looking very good and healing extremely well - in fact, he conferred with Mom's doctor and they gave the go ahead for the smaller wounds to go to an every other day dressing change. This was great as it means that Mom doesn't have to have a nurse visiting every single day, nor have me dressing the wounds every day - it is a relief to not have someone poking at her all the time!

We see her surgeon next week and we hope he will give us an idea of how much longer she has to have her wound vac in place. The wound vac is a bit of a contradiction - on the one hand, it is horrible for Mom to be constantly attached to the thing, its heavy to carry around, and the dressing changes are much more complicated than with a traditional dressing; on the other hand, it makes the wound heal much faster and if it is discontinued, the progress may slow down quite a bit.

Otherwise, she is doing very well. All of her vital signs are excellent, her pain is well controlled and she is very patient with me trying to stuff her full of food all the time.

She continues to be very tired and somewhat "shaky" which frustrates her to no end. However, she does her exercises faithfully (including 'stairs' twice a day) and we have made several small outings. She really improves a little each day, and her spirits are amazing, especially considering all she's been through.

Mom is definitely my hero. Even when she's having a "bad" day, she is sweet and patient, and her sense of humor seems to stay intact no matter what.

Hopefully, the next time I have an update for you, we will be able to report that the wound vac is off and her stamina has increased significantly. In the mean time, thank you to everyone for the messages, cards, flowers and treats you continue to send. It is so cheering for both Mom and I to know how much support, encouragement and love are out there for both of us. As Mom says to me pretty much every day, we are Very Lucky.

Friday, June 22, 2007

End of the first week at home

Diana is doing well today. She had the dressing change on her large wound with the wound vac and that was the least painful and traumatic that its been, at least since she came out of heavy sedation. The wound is looking good, and she will have an evaluation from a wound care specialist next week, which will give us an idea of how much longer she will need the wound vac to be in place.
Her other wounds are looking good as well, and I am in charge of them for the weekend. Not a skill I ever particularly aspired to, but it is interesting to know all of the theory behind working to heal large wounds successfully.

Mom is exhausted and still so weak, which is frustrating her to no end. I am trying to keep her stress down to a manageable level, and remind her that her job is to recover fully so that she can return to everything she used to enjoy and do so well with no restrictions. However, the world does encroach. I must admit that I'm feeling a bit frustrated in trying to communicate with folks who don't know her well or don't seem to understand the seriousness of her illness and the long way that she still has to go. Evidently, to some, if you are no longer in the hospital, you are well and able to do anything they ask of you.
We certainly are grateful for all of you, her friends and loved ones, who Do understand, and are encouraging her to concentrate on her recovery fully. This makes it possible for me to keep my temper under control with others I have to deal with, so thank you. For those of you who knew my Dad, you probably knew he had a bit of a temper and didn't hesitate to use his rather caustic wit or sharp tongue when provoked - well, let's just say I'm a chip off of the ole block. : )

Mainly, we are doing very well and are grateful for Mom's daily improvement and returning health.

Thanks to all of you for continuing to send funny, sweet and encouraging cards and messages, gifts, flowers, etc. Mom really appreciates your thoughts and prayers, and they are very cheering to her, particularly if it has been a very challenging day.

Thursday, June 21, 2007

Doing well

Diana is continuing her good and steady progress. She had a busy day yesterday, which involved an outing to see my Grandmother, so she is very tired today. However, she healing well on all fronts and is a model patient (well, mostly.) : )

I had more training in wound care today, and did a little better this time. Mom's home health care nurse is a very kind person and a practical, good teacher - Mom and I both feel very relieved when she is here. She and Mom both agree that I will be ready to "fly solo" by Saturday, so we'll see. Hmm, another random skill I can add to my resume!

Mom's wounds are healing very well, although they were so large that it will still be a good while before she can be without daily dressing changes on the two smaller ones, and the wound vac on the very large one.
Other than that she is doing great, although her overwhelming fatigue and lack of appetite continue to be challenges. And, though we don't have as many interruptions as we did in the hospital certainly, I think Mom would be very happy to go an entire day without having a nurse or a therapist come to the house. Again, her impatience is really showing itself now, which just shows me how tough she is, and how quickly she is returning to herself.

However, its easy to think that she's farther along in her recovery than she is, especially for those who don't see her fatigue and constant (although manageable) pain. A look at even one of her smaller wounds, or the incision on her abdomen, certainly gives one a better idea of how extremely ill she was, and what a long way she still has to go in her recovery. Of course, she puts on a brave face and talks an ambitious game, so its difficult to know how fragile she really is - but believe me, she is still a sick chicken (as my Grandma would say.) Every day I'm grateful for her, and mindful of how close we came to losing her.

Now, my role is the bad cop I'm afraid: I'm the food cop ("One more bite - come on, you can have one more!"); the medication cop ("Have you had your morning meds? ALL of them? How about vitamins??"); the rest cop ("Ok, you can go upstairs and look for that book - after you lay down for half an hour. I Know you're not tired, but just try....") Good thing Mom and I love each other a lot, or she would be pretty sick of me by this time. : )

I'll have more updates soon. In the mean time, know that she is doing well and recovering quite quickly - although, "quickly" is a relative term in this context. When one considers that a little more than a week ago she was barely able to get out of bed, with assistance, and able to stand only for a few seconds, her progress thus far is frankly amazing.
Thanks to all of you who have been such great cheerleaders for her - she appreciates the support and encouragement so much!

Tuesday, June 19, 2007

Good Progress

Diana is continuing to improve and is really enjoying being at home. One of her main challenges now is being able to evaluate what she has the strength and stamina to do - she is in her own, familiar environment now, so she feels like she should be able to do what she's used to doing. This is not to say that she's not being careful and cautious - its just frustrating to her to realize that, for instance, a ride in the car to visit my Grandmother is a big deal now.

I am relieved when she gets impatient though, or is frustrated by her relative lack of independance (compared to what she is used to) - that lets me know that she is absolutely returning to her old self. : )

Otherwise, she is doing very well. She had the dreaded wound vac dressing change yesterday, but it went very well and our home health care nurse was very gentle and very practical. The wound is healing very well, and Mom's nurse was pleased with how it was looking - and that was without the benefit of having seen it before it had progressed so well. So, Mom's apprehension about the pain and debilitating exhaustion that used to be associated with the wound vac change has been alleviated a bit.
Today, the nurse started teaching me how to change the dressings on Mom's two smaller wounds on her side. I did ok for the first time, I think - they aren't going to make me fly solo until I feel ready, but our nurse is a very good teacher, and dressing those wounds is nowhere near as complicated as the large wound with the wound vac on it (and that change is something that no one except a wound care nurse would do.)

Mom's other challenge remains eating enough and stimulating her appetite. Part of her lack of appetite stems from her illness and the way her body shut down a lot of its normal processes to direct energy to fighting her infection and healing her wounds and incisions, part of it is due to some of her medications, and part is just being so weak and tired all the time (which makes eating feel like a chore.) I hope my cooking doesn't contribute, but I can't promise that it doesn't - I freely admit that its not my best thing. : )

She is doing better every day though. Her ranges of motion, strength and mobility increase every day, and she is now no longer having any issues with fine motor skills. She does, ironically, have some vision issues, but we think they are largely the result of medication side effects and fatigue, as well as her body's recovery process from the trauma it went through with the general anesthesia, sedation and plethora of drugs. This is also improving though, and this morning she was able to read comfortably for a short time.

We are so grateful for the support, encouragement and love we've received from all of our friends and family. The offers of help and support are so very appreciated and valued.

Mom and I feel very fortunate - first because she is now recovering, and there was certainly a period of time when we weren't sure that would happen; and secondly because of the outpouring of positive and helpful energy and actions from every corner. For instance, I am so very grateful that my employers have been so generous in giving me the time to be here with my Mom and help her in her recovery. We know how lucky we are to have so much love and kindness in our lives. Thank you so much.

I will continue to update the blog, but my posts will likely be less frequent now, as she is doing so much better. In fact, I'll just let her read the comments now, instead of reading them to her - I know she'll really enjoy that. So, please be patient if I go a couple of days without an update - it just means she is doing so much better that we are busy!

Saturday, June 16, 2007

There's no place like home

Sorry I missed posting yesterday - it was an especially busy day, getting things set up at the house and then transporting Mom home.

Diana did really well yesterday though. She had 2 therapy visits before she left the hospital, so they really kept her busy up until the moment she was discharged.
She also had to endure the dressing change on her large wound yesterday morning - however, this was the least painful its ever been and wasn't nearly as traumatic as it has been before. I saw the wound for the first time and it is quite spectacular in its size and depth - and then her wound care nurse showed me how large it had been before it started healing so well. I have to admit, the whole thing made me a little woozy. However, I'm glad I saw it as it gives me an even deeper appreciation for what Mom has been through. Its frankly amazing that she's healed as well as she has, from a wound that large.

Mom and I were both a little nervous about getting her home and up her first large flight of stairs - however, despite being exhausted, she did just great and walked up her stairs with no problem. She had a restful late afternoon and then had a real sleep last night, for probably the first time in more than a month (including the week before she went into the hospital, when we thought she had the flu.) Her appetite has improved already and she tells me that having "real food" makes all the difference, which I can believe - there is always something a little "off" about hospital food, no matter what they do with it.

Right now, she is just extremely fatigued and needing to rest for most of the day. So, she's still not feeling up to visitors right now. But I'm sure that as she gets more consistent good rest and is able to eat more to keep up her strength, she will feel more perky in no time. She is also looking forward to getting to return to her regular vitamin regime, which should also make her feel more like herself. Those of you who are familiar with Mom's, and my, views about vitamin and mineral support know what an important issue this is! : )

So, she is really enjoying being at home, and I'm so glad to have her here as well. I can't believe how well she's doing, and the way she's maintaining her good spirits. She is a truly amazing woman and I'm so proud that she's my Mom.

I'll keep you posted on how she is doing. Right now, I'm looking forward to stretching my culinary skills to tempt her to eat and working with her on her strength and endurance. And I'm just enjoying having her back where she should be. St. Vincent's, you were very good to us, but I can't say that either of us is going to miss you. : )

Thursday, June 14, 2007

End in sight

Diana is having another great day today. I am so impressed, as I keep preparing myself for small set backs the day after great strides - then I come in the next day and there is more improvement, rather than anything to make up for. Mom is just amazing.

Today she went for a walk in the hall with her physical therapist, which was twice as long as her walk yesterday, and did just fine. She also had an honest to goodness shower today, which she said felt wonderful. Mom and I agree that showers are one of the definitive markers of a civilized culture. : )

She is doing so well on all fronts - no anemia, all vital signs normal to excellent, no remaining signs of the infection, her wounds and incisions healing beautifully. Her nurses and doctors are all so surprised and pleased with her progress and general good health. See, we told you - all those vitamins we take Are good for something after all!

Our big news today is that her doctors are sending her home tomorrow! What a surprise, as we had previously been told that she wouldn't be going home earlier than next week. But, she is medically stable and progressing so well that they don't feel she needs to be in the hospital any longer. And, she is going home rather than to a rehab of any kind as the goal of the therapists at the rehab would be to get her as mobile as she is now - as her discharge coordinator said, there is no point moving her to a rehab facility just to move her out the next day.

She will have in-home and eventually out-patient physical and occupational therapy, which will help her build her strength and endurance back up. Her main challenges remain muscle weakness and exhaustion in combination with pain and lack of appetite; however, I'm hopeful that once she is home in a calm and familiar environment, she will be able to get some real rest and feel some contentment that will speed the healing and recovery process. Plus, we both think her desire to eat will return when her food is no longer delivered on a green hospital tray.

I would like to thank and compliment her entire health care team here at St. Vincent's - they have been wonderful, without exception. From her doctors and nurses, to her therapists to her nursing aides and the folks who deliver her meals, every one has been kind and committed to giving her the best care. Most nights I was able to go home and rest because I was confident that she was being so well taken care of; but, every last one of her nurses encouraged me to call and check on her any time I liked, even in the middle of the night (and when I did call in the middle of the night, they were always pleasant, helpful and reassuring.)

Thank you to all of you for giving Mom so much support, positive energy and love. We were saying today that we could run a small florist shop out of her hospital room if we wanted to. And the cards, letters, emails, calls and comments on the blog have been wonderful and so touching and encouraging for Mom.
And thank you for your support of and concern for me as well - how kind everyone has been. Mom and I say to each other every day how fortunate we are in our friends and family.

I will keep making posts to the blog to allow everyone to keep up with her progress. Besides, that will be a good encouragement for her when physical therapy is irksome or boring - I'll just tell her that I need to have something to report for the blog, and that will inspire her!